Access To Information
Everyone with chronic Lyme disease
should have access to a up-to-date information.
This should include the "auto-immune"
and "persistent theories" regarding
the cause of chronic Lyme disease.
Information should increase understanding that Lyme symptoms can
include fatigue, concentration and memory problems,
headaches, irritability, depression, and joint
pain. Lyme patients (and their families) should
also be aware that they may have persistent and
recurrent symptoms.
Spiritual
Many people find comfort in religious or spiritual feelings
during this time. Some may find comfort and direction
from prayer or a spiritual leader. Religious leaders
are used to dealing with complex illnesses and
will have experience in helping you with your
recovery.
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Communication
For some patients with chronic Lyme disease, it becomes apparent
that both antibiotics and symptomatic treatment
fail. Sometimes facing a future with chronic Lyme
disease is more debilitating than the day to day
suffering caused by the chronic Lyme disease itself.
An open exchange between a physician and a patient
is particularly important to determine a realistic
treatment plan for treatment failures.
The symptoms of Lyme disease can be vague and hard to diagnose,
with symptoms varying widely. Many individuals
may find it difficult embarrassing or difficult
to explain their symptoms.
You need to be persistent. You may be told the symptoms are normal
or caused by depression, anxiety, fibromyalgia,
or chronic fatigue. It may take a long time and
several visits to a physician to be finally diagnosed
with Lyme disease. Catching Lyme disease early
offers the best chance for successful treatment.
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